Some people, more than others, constantly set themselves challenges…there may be no reason for this, other than, “just to see if I can”! For me, it’s been running. I started running as a teenager and have done it ever since. At uni, I was not up late at night partying, but when suffering from insomnia I would go for late-night runs to clear my head or just for something to do! I’ve enjoyed many-a 10k race, tried a multi-terrain type thing that was a giggle and done a couple of half marathons.
For the last few years I’ve found running harder and harder. It’s never easy to go for a run when it’s cold or raining but even in the good weather my body has complained, my hips ached, I’d get sharp pains in my ankles, my head throbbed no matter how hydrated I was and at times it feels as though ever cell in my body was crying to stop. Instead of the exhilaration I used to experience, when returning from a run I’d just feel exhausted. My brain was willing but my body was not. I’ve had breaks, thinking I just needed to rest for a bit but every time I went back to it, I just couldn’t get going.
Last year, many of you will know, I was finally diagnosed with fibromyalgia. This is a chronic pain and fatigue disorder that I will need to manage for the rest of my life. Good news, a key part of management is exercise! Bad news, “grading” and “pacing” are not words I’m used to when it comes to running! Connected, or unrelated I’ve also had a lot of other medical problems recently that have put spanners in the works BUT… I have had to learn…
Grading – This involves starting at a very low manageable level of exercise, i.e. 5 minutes of walking per day for a week or 2 (depending on residual fitness). The idea is then to build up very slowly, 1-2 minutes at a time and this is then maintained for a period of time. Gradually other exercises can be added in (of particular value in fibro are things like warm water swimming or yoga).
Pacing – Pacing involves doing the same amount of activity each day, no matter how you’re feeling. The hard bit for me is that when I’m feeling good I want to run and run, which (with fibro) means I’ll pay the price within hours. Even just running a bit further than planned, my joints and muscles ache and the fatigue feel unmanageable. On bad days it’s easy to feel that exercise just isn’t possible but studies have shown that even though symptoms may increase, if appropriate limits are set, it is possible to repeat the performance from the previous day.
I was referred to a specialist clinic and I went with my long list of questions… at the top? “Will I ever be able to run a marathon?” To be honest, the physiotherapist was not forthcoming with a promising answer but she could see I was enthusiastic, wasn’t going to give up without a fight and she didn’t want to put a dampener on things so she suggested 2 years may be a time scale I could work to.
So, with grading and pacing in mind, October 2018 in my goal.
In Novemeber 2016 my GP referred me to the gym. I started walking for 5 minutes on the treadmill and using the cross trainer and resistance machines to improve my fitness without putting strain on my joints. It was really hard making all the effort to go to the gym just for 10-15 minutes exercise but I had to keep my eyes on the goal. Gradually I added in 2 minutes jogging, increasing it bit by bit, listening to my body and working within my limits. Each increase, my instincts would say “push yourself”, I then have to be strict with myself and make the increase smaller than I wanted – literally 1 minute or 0.2km/h at a time. It’s been really hard.
Pacing has been a tricky one, I’ve hit and broken through “the wall” many times as a relatively fit and healthy individual. I have fallen into the trap of thinking that was all I needed to do with fibro. Unfortunately, after the wall, there’s a 20 inch thick concrete block, then a steep mountain crag, if you do manage to push yourself through all those, there is then a crevasse… So, even when I’ve wanted to do more, if my plan says to repeat the previous day, that is what I do.
So, working carefully, the treadmill and cross trainer have got me to the point of being able to jog for 30 mins. I registered with Parkrun, a free weekly 5k run organised across the world.
Joining the 500 other runners I felt that excitement/nervousness I’d experienced previously at much bigger races and it felt good! I promised my husband I would “plod” round. I was drawn along with the crowd but I was determined not to be driven by striving for a PB or specific time. I must admit when I received my time by email I was quite excited… That is not the point, the point is, I did it, I jogged/ran the whole thing and I really enjoyed it! Yes I ached afterwards but that’s not the end of the world, I did all my usual warming up and cooling down and I can safely say I have not felt any unmanageable adverse affects!
Fibro aside, I’m really hoping none of my other health problems get in the way! My next goals will involve running further but increasing it very slowly. I’ll keep you posted.
I’d love to hear if anyone else has set themselves any goal or challenge, fighting against the odds!